Friday, March 28

Jackie had a restless night.  In fact he only slept for about 1.5 hours.  Communication is still a struggle so we wrote three body parts on a piece of paper.  We asked Jackie to point to the body part that hurt.  He pointed to the word that read – head.

We spoke with the docs and are starting pain meds around the clock. His face is really starting to swell.  It will most likely get worse the next couple of days.  This is a normal reaction from the surgery.  His eyes are already almost swollen shut.  I cannot tell you how hard this is for a parent.  My heart goes out to all of you who have children that have gone through major medical issues as I now can completely understand the helplessness that you have felt.  I  just want to make it all go away.

Jackie’s initial CAT scan from right after surgery looked good.  PTL. He already had another scan this morning.  We are waiting for those results. They will dictate our next steps.

We are once again getting another roommate.  This will be our third one.  A private room is still not available.

Lots of strength will need to be gathered to get through the next couple days.  We will need to work Jackie through the post op swelling and pain, starting up of his meds, the nutrition through his feeding tube and also at some point restarting his blood thinners.

I am so proud of Jackie’s strength and determination to get through this.  Each day we get a little closer to getting whole again.